

To help amplify authors writing books like this, Yoon has been very involved in the organization We Need Diverse Books, which promotes books like Margarita Engle's Enchanted Air and Brandy Colbert's Little and Lion. Rather, Yoon believes it’s valuable to present characters' diversity as unproblematic fact, and not as what the main thrust of the novel is about. the Homo Sapiens Agenda, where the conflict revolves around a gay teen coming out. Nicola Yoon has been very vocal about the need for literature, particularly young adult literature, that represents issues of diversity not as the problem as in a novel like Becky Albertalli's Simon vs. His autopsy revealed that his sister had Epstein-Barr virus, which be detected in pre-transplant screenings and thus caused his fatal infection. He died in 1984 of mononucleosis, a few months after receiving a bone marrow transplant from his sister. The most famous individual with SCID was David Vetter, who was born in 1971 and spent his life in a sterile chamber. Non-curative treatments, such as reverse isolation (which Maddy’s mom uses by installing the airlock and ventilation system in their home) are less effective, as it simply creates a pathogen-free environment without treating the problem.

Curative treatments, especially bone marrow transplants in the first three months of life, have been very effective-and if the disease can be detected before birth, it’s possible to perform in utero transplants, which allows the fetus to develop a functional immune system in a sterile environment. Sufferers are extremely vulnerable to infectious diseases, so untreated babies often die from some sort of infection before their first birthday. Though there are several different types, the disorder essentially means that a person doesn’t have a functional immune system or doesn’t have one at all. The End is the Beginning is the End Future Perfect #2Īs Maddy explains in the novel, severe combined immunodeficiency, or SCID, is extremely rare (estimates suggest about 1 in 100,000 babies born have the disorder) and extremely dangerous. Neighborhood Watch #3 Five Syllables His Last Letter is Haiku Madeline’s Dictionary The Observable World Other Worlds Aloha Means Hello and Good-Bye, Part Two Fifteen Minutes Later Two Hours Later Ten Minutes After That

Night Two Night Four Night Five Night Six Night Seven
